Keep Forgetting

I almost keep forgetting to report on Emily's new diet. It is going GREAT! The last several times I have reported too soon on changes and then a day after I post, she is back to her old self. So this time I wanted to wait and make sure it was going to stick.

So for those who don't remember, we did a suck/swallow test and determined that some milk was going in to her lungs each time she ate. We thickened her milk and she was able to consume it properly. So we are now adding rice to her milk (along with the formula, protein, oil and meds) in order to thicken it up and it is working like a charm. She is keeping her food down and other than getting constipated, seems to be doing well with it. She is sucking better and can get her bottle down in about 15 minutes now (that's half the time). It doesn't bother me to feed her anymore although I am totally sick of the frequency (still at 6 bottles and two feedings of solids each day...mangos are her favorite).

A 'Normal' Weekend?

How crazy is this? We just had a 'normal' weekend. Remember that our weekend consists of Monday, Tuesday and Wednesday, so we usually fill it with drs appts. Every week since a month after Em came home, we have had four to five drs appts a week. All of the sudden, this week, we only had ONE!! I didn't say anything earlier because I didn't want to jinx it before it happened.

SO, we went in to Pasadena and visited with some friends from OR. It was a LOT of fun to just hang out and talk. They have three boys who are 5, 3, and 4 months. They were GREAT at playing with the girls and figured out real quick that Em would laugh if they got close enough to her face for her to see them.

Baking with water...I love imagination!

Yep, Em slept like this on Aunt Penny for well over an hour.  Recall we stayed with Penny and Chuck when we were up here to see the specialist and deal with all of Em's eye issues back in January.

Learning to swim.





Kids...always have to carry around things that are way too big for them!

No, she doesn't care that he is 500 times bigger than her.


It's weird to be around a four month old and realize just how right on the physical therapists are when they say Emily is developmentally a four month old.  They literally have the same set of skills...Em just does them all a little better and she carries more weight on her legs. 

Remember when we brought her home how we had to work on stretching her back and shoulders out because she had lain on her back for so long that her muscles were tight across her back and she couldn't bring her hands together in front of her?  We now have the same issue with her hips and hamstrings.  When she tries to sit, she rocks back and rounds her back, making it impossible to balance well.  So now we are stretching her legs and hips, hoping to help her sit some day. 


Cooking


Then today, we spent the afternoon in our own backyard, watching our girls and hanging out as a family.  What?  Yes, all together.  It felt so good! 


Okay, low riders...this is how things fit when your kid is a 2T on top and a 12-18mo bottom...she has the cutest, tiny little bum!  She loves to stand in the pool and throw the ball to Sammy because she is in control...he can't just jump up and take it out of her hand.








These are the books Em got for free from the Braille Institute. Even though she is seeing well, we have no idea what kind of detail she is seeing, so she will still be followed by a consultant from the Institute until we know for sure that she will not need their services.

Okay, so K pushes her little stroller all over and puts all kinds of things in it...I have seen dolls, monkeys, fish, little people, and today when the ball showed up, I tried to get a pic.

So later today I was holding Em and she would not stop crying and I was staring off trying not to pay attention when I realized I was staring at the toy stroller. Yes, the light went on and so I put her in there and K pushed her all over the house for the next 15 minutes. It was so funny and we only almost tipped twice. K is a good driver! I don't know what Em thought, but she stopped crying. :) I know she looks scared but that is just cause her glasses are off so she has bug eyes.